Disabled children, like all children, deserve the very best health services available in Australia. Unfortunately, sometimes they just do not get the attention they need from health practitioners and services. Whether this failing is due to parental issues or is more systematically endemic, there are changes afoot to make sure that this situation improves. Passionate advocates from within organisations representing the families and carers of people with disability are making their voice heard in local, state and federal government. There are programs and consultative processes underway in many areas around Sydney to fast track major shifts in this sector.
Keeping Our Disabled Children Healthy
Community groups are linking up and finding common voice on what needs to be done to improve health services for children with disability. There are disability support groups for children and their families. These groups aim to help lighten the load that many families feel with disability. Knowing that you are not alone in your experiences and that together these families can help each other. Communication between individuals, groups and the community is part of the solution to improving the health of kids with disabilities. Support on the ground. and support from the legislators making changes for the better, will make a difference in this space.
Schools are becoming more disability friendly and flexible in their approaches to kids with special needs. It really needs to be a policy of meeting individual requirements; and not one size fits all. Parents and families must be engaged by all institutions in the educational and healthcare fields; they are there to service what these families and their disabled children need. Communities need to come together inclusively and not leave these valuable members on the outer. Too many families become isolated and suffer from that experience.
Putting some fun back into life for carers and parents, can be made possible through respite programs and support networks. We must all make this issue a priority within our own communities. Don’t hang back, step forward and see what you can do within your sporting, religious, recreational and regional groups and organisations. Put disability at the top of your priorities in terms of being inclusive and supportive. Australia is beginning to grow up and this can be seen in the acceptance of diversity within our communities. Keeping our disabled children healthy depends on affirmative action taken by us all. We cannot just leave it up to government agencies.